chronic fatigue, Chronic illness, Fibromyalgia, invisible illnesses, loneliness

Solitary Confinement

There is a saying " The only thing worse than being alone and lonely is being surrounded by people and feeling lonely". I often think that should be the epitaph on my gravestone. I know that sounds morbid but living a life blighted by chronic illness is pretty morbid. You are on a constant journey… Continue reading Solitary Confinement

chronic fatigue, Chronic illness, Fibromyalgia, invisible illnesses

Holidays – The aftermath

I am just back from holiday. But it feels like I am back from 4 weeks of trekking in the foothills of the Himalayas. I was dreading going on holiday, I always do...... well ever since I became unwell. before I became unwell travelling was my greatest passion. But this illness has taken that passion… Continue reading Holidays – The aftermath

chronic fatigue, Chronic illness, Fibromyalgia, invisible illnesses

Brain Fog

Having Fibromyalgia brain fog is almost as debilitating or even more debilitating as the constant pain and chronic fatigue. It is so difficult to describe what it feels like. Brain fog, chronic fatigue and strong pain medication together is a nightmare cocktail, it is like a "Cement Mixer" cocktail,  Bailey's and lime juice mixed together which… Continue reading Brain Fog

chronic fatigue, Chronic illness, Fibromyalgia, invisible illnesses, loneliness

Anxiety and apologies and guilt

Since I became ill all I seem to do is apologise for my absence, and my unreliability and waste time agonising over small things,  and I feel guilty about almost everything. For some reason, I feel guilty for just living my life as best I can. I am fatigued and in pain every day. But… Continue reading Anxiety and apologies and guilt