https://youtu.be/l-O5IHVhWj0 Chronic illness is tricky, you never know what’s going to happen Thora Allan The 2023 chapter of Fibromyalgia has been very different from anything I have experienced since my diagnosis 12 years ago. My health has been exceptional. I’ve gone from screaming into my pillow at night, in tears from the relentless pain, wishing… Continue reading It’s tricky // Part 2
My interpretation…. I think about those who left, friends no longer able to see me. The real me lost in the fog of chronic illness. All they could feel was pity, all they could do was judge. I was still me. I just got ill. I didn't ask for it, I didn't cause it, I… Continue reading I’m right over here, why can’t you see me? I keep dancing on my own
If you entrust your data to others, they can let you down or outright betray you. Jonathan Zittrain Receiving my Fibromyalgia diagnosis did indeed feel like “the party was over” looking back on it. It was. It still is to some extent. Finally, It was confirmed after 3 years of declining health. Initially, I felt… Continue reading When the party’s over
“Let us make hay while the sun shines.” — Miguel de Cervantes Saavedra The weekend I just had was far from typical. I managed to have a “real” weekend, you know, like “normal” people do. My health has improved dramatically over the past few weeks. Why? I don’t know. For how long? I don’t know.… Continue reading “Let us make hay while the sun shines.”
Rocky said: "Let me tell you something you already know. The world ain't all sunshine and rainbows. It's a very mean and nasty place and I don't care how tough you are it will beat you to your knees and keep you there permanently if you let it. You, me, or nobody is gonna hit… Continue reading It ain’t about how hard you get hit or how many times you get knocked down. It’s about how hard you can get hit and keep moving forward.
I’ve had an amazing year. It's the best I’ve felt since I was diagnosed over a decade ago. It's also the longest period of good health I’ve experienced in that time. Taking time to reflect, sometimes I wonder if I may have pushed myself too far. Almost impossible not to when you are feeling so… Continue reading Hanging by a thread
We merely exist. We must fight to have any sort of life. Only to be judged for doing so. We don't look ill or ill enough - JUDGED We do things that healthy people do - JUDGED We don't do enough - JUDGED We do too much - JUDGED We are too fat - JUDGED… Continue reading To exist is to be judged
Are you seeking security or adventure? Adventure for sure
What strategies do you use to increase comfort in your daily life? Gratitude Goal setting Finding the joy
Five Stages of Grief Acceptance of your new reality can take years. You can slip back into denial and that's ok. I am still in denial 12 years on. I refuse to be beaten by Fibromyalgia. I will not allow it to stop me from doing the things I choose. I perform the act of… Continue reading Acceptance, resignation or denial, or is it just finally understanding?
Orkney Fibromyalgia Sufferer 