Being chronically ill has made me grateful for everything I have. Being chronically ill makes you take stock of your life and who and what's in it. I realize that something shit has happened and it can't be changed. So I am grateful for the simple things in life and through that, I have realised… Continue reading Gratitude
Category: chronic fatigue
Insomnia
How is this for irony? You suffer from Chronic Fatigue Syndrome and you can't sleep! Whatever evil created this illness must have thought they were pretty smart. I struggle to wake up in the mornings, tired by lunchtime, dying from fatigue by 3 pm begging to go to bed at 5 pm stay up for… Continue reading Insomnia
Misunderstood
Since I became ill I have changed. Not because I want to you understand, the change has been organic. My perceptions of situations, conversations, dynamics and people have changed. The people around me have changed. It's strange how something invisible can change so many things. I have gradually gone from being hard as stone to… Continue reading Misunderstood
Restriction and Limitation
Every day I am restricted and limited. I can't be the Mum I want to be, I can't be the wife I want to be, I can't be the friend I want to be. I can't be the person I used to be. I can't attend the 4 opportunities of Derby training I want to… Continue reading Restriction and Limitation
Isolation and disconnection
Most days I try to be upbeat and create the illusion that all is well. When in fact I am rarely genuinely happy. If somebody asks me "how are you?" I never reveal how I am. I try to hide this with a larger-than-life personality ( which is a complete facade) and talking lots, which… Continue reading Isolation and disconnection
