How is this for irony? You suffer from Chronic Fatigue Syndrome and you can't sleep! Whatever evil created this illness must have thought they were pretty smart. I struggle to wake up in the mornings, tired by lunchtime, dying from fatigue by 3 pm begging to go to bed at 5 pm stay up for… Continue reading Insomnia
Since I became ill I have changed. Not because I want to you understand, the change has been organic. My perceptions of situations, conversations, dynamics and people have changed. The people around me have changed. It's strange how something invisible can change so many things. I have gradually gone from being hard as stone to… Continue reading Misunderstood
Every day I am restricted and limited. I can't be the Mum I want to be, I can't be the wife I want to be, I can't be the friend I want to be. I can't be the person I used to be. I can't attend the 4 opportunities of Derby training I want to… Continue reading Restriction and Limitation
Most days I try to be upbeat and create the illusion that all is well. When in fact I am rarely genuinely happy. If somebody asks me "how are you?" I never reveal how I am. I try to hide this with a larger-than-life personality ( which is a complete facade) and talking lots, which… Continue reading Isolation and disconnection
Well…. After 4 years of suffering with 2 chronic conditions – CFS/ME and Fibromyalgia and losing my job because of it, I decided that 2017 would be “My year” I finally seem to have my pain under a little control not huge amounts but better than it’s ever been since I became unwell. After 4 […]… Continue reading 2017 – My Year — Orkney Fibromyalgia Sufferer
