https://youtu.be/l-O5IHVhWj0 Chronic illness is tricky, you never know what’s going to happen Thora Allan Feeling fatigued after the busy few days I've had. I haven’t slept well all week either. No sleep at all last night, Thursday or Friday night. I am doing remarkably well considering. I don’t sleep well at the best of times.… Continue reading It’s tricky
My interpretation…. I think about those who left, friends no longer able to see me. The real me lost in the fog of chronic illness. All they could feel was pity, all they could do was judge. I was still me. I just got ill. I didn't ask for it, I didn't cause it, I… Continue reading I’m right over here, why can’t you see me? I keep dancing on my own
If you entrust your data to others, they can let you down or outright betray you. Jonathan Zittrain Receiving my Fibromyalgia diagnosis did indeed feel like “the party was over” looking back on it. It was. It still is to some extent. Finally, It was confirmed after 3 years of declining health. Initially, I felt… Continue reading When the party’s over
“Let us make hay while the sun shines.” — Miguel de Cervantes Saavedra The weekend I just had was far from typical. I managed to have a “real” weekend, you know, like “normal” people do. My health has improved dramatically over the past few weeks. Why? I don’t know. For how long? I don’t know.… Continue reading “Let us make hay while the sun shines.”
Rocky said: "Let me tell you something you already know. The world ain't all sunshine and rainbows. It's a very mean and nasty place and I don't care how tough you are it will beat you to your knees and keep you there permanently if you let it. You, me, or nobody is gonna hit… Continue reading It ain’t about how hard you get hit or how many times you get knocked down. It’s about how hard you can get hit and keep moving forward.
If by chance you picked up this piece of paper. I would like to thank you for reading it and I hope that you related to it somehow. My greatest wish is that it made you feel less alone and it leaves you feeling that someone, somewhere understands you. Around a decade ago after a… Continue reading FND – The Neurodivergent in me
“There are days I look in the mirror at my grey, pasty, drawn-in face and say to myself “I miss you where did you go?””I missed you, where did you go ?
Everyone has a book inside them, which is exactly where it should, I think, in most cases, remain.” Christopher Hitchens I understand that it's a big leap to write a book from writing articles and my blog. I have a book inside me, I have several in fact. I am sure of it. Should they… Continue reading They say most people have a book in them, Do I have a book in me?
There are days I look in the mirror at my grey, pasty, drawn-in face and say to myself “I miss you where did you go?” Having a chronic illness turns your whole world upside down. It affects every part of your life. Not just physically but mentally too. It's like being burgled. Robbed of your… Continue reading I missed you, where did you go?
Hi, I’m Candace D. AKA @diaryofasickgrl 💛 I had seemingly random health issues basically my whole life until I got “the big sick” in 2020 and was diagnosed with hEDS, MCAS, POTS, and Raynauds in April 2020. At first I turned to friends and family to talk about what was going on and quickly realized… Continue reading Diary of a Sick Grl *Guest Spot*
Orkney Fibromyalgia Sufferer 