Fibromyalgia

More Than Fibro Charity plea for local volunteers

A Scottish fibromyalgia charity based in Coatbridge is looking to expand its reach. Already running support groups in Coatbridge, Galston, Glasgow, Falkirk and Irvine. Upon my diagnosis, I was disappointed to learn there were no Fibromyalgia support groups in Orkney. With NHS Orkney’s only treatment provision for Fibromyalgia being medication at the time, it concerned… Continue reading More Than Fibro Charity plea for local volunteers

Fibromyalgia

I’m right over here, why can’t you see me? I keep dancing on my own

My interpretation…. I think about those who left, friends no longer able to see me. The real me lost in the fog of chronic illness. All they could feel was pity, all they could do was judge. I was still me. I just got ill. I didn't ask for it, I didn't cause it, I… Continue reading I’m right over here, why can’t you see me? I keep dancing on my own

diagnosis, Fibromyalgia

When the party’s over

If you entrust your data to others, they can let you down or outright betray you. Jonathan Zittrain Receiving my Fibromyalgia diagnosis did indeed feel like “the party was over” looking back on it. It was. It still is to some extent. Finally, It was confirmed after 3 years of declining health. Initially, I felt… Continue reading When the party’s over