Fibromyalgia

We are all on a journey to the same destination

Photo credit –
Orkney Fibromyalgia Sufferer

We are all on a journey to the same destination. The destination doesn’t matter. It’s the journey there that counts. We are all on our individual paths. That’s what makes life so beautiful. There are only two things that are certain in this world, life and death. Some people say that there are three. Taxes is the third. So with only two or three certainties, the rest really is up to us to decide. We have complete freedom to choose whatever path we desire and possess the luxury to change our minds.

I want to make each day count. I am fed up with life passing me by because of the enforcement officers called Fibromyalgia, ME/CFS and FND. I am growing ever more aware of my own mortality. The days go by so fast running through my fingers like grains of sand.

I have begun thinking about the headstone I would like, and how I want to be buried. My wish is to be buried at sea with a memorial bench on the shore nearby. I have often thought about the music I would like. The playlist is ever-growing. I worry about how I will be remembered. I am sure that everyone does. What concerns me is that I will be remembered as being constantly unwell. It concerns me so much that I plan to write my own obituary of sorts to aid the minister and jog the memory of my loved ones.

How would I like to be remembered?

I would like to be remembered for my kindness and compassion. My ability to treat others how I would like to be treated no matter how badly they treat me. I want to be remembered for my duggedness, and tenacity. My unwillingness to let chronic illness win. My passion for sailing and all things nautical. As well as my dedication to helping the chronic illness community through my social media platforms and volunteering for charity.

I don’t want to be remembered for spending all my free time in bed too ill to participate in life. I hope people remember my “well spells” and do not see illness when they remember me.

I am keen to capitalise on the “well spell of 2023” I must be careful about it though. Not do too much, not do too little. Without a tool to adequately measure the perfect amount of activity, I must rely on guesswork. I must use the power of my intuition effectively and moderate my activity accordingly.

How would you like to be remembered? As a chronically ill person is this topic something that concerns you too?

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